Tuesday, August 25, 2020

Wearing a Cannula - How Did You Decide?

 How to Wear Your Cannula

How did you decide how to wear your cannula? Is that the best way? How do you know?

When I left the clinic as a brand-new oxygen user, they gave me a big tank to take home. In putting it in the back seat, as they recommended, I had to remove the cannula. Since the tank was behind me, I think I just put the cannula on with the hose behind me, too. I have worn it that way since then. Here's what it looks like on a mannequin:


This means that the tubing hangs down your back, and as you walk (or wheel) it drags behind.
One advantage is that since it is not in front of you, you don't trip on it.
Another advantage is that it does not tug down on your ears making them sore.
If you are interested in wearing a necklace or scarf, the tube does not interfere or distract.


A disadvantage is that if someone steps on the tube, your head jerks back.

I have noticed that most people wear the cannula like this, with the tube wrapped around the ears and the slider in front of you.
An advantage is that this is easy to put on.  The hose stays in front of you.
This is easy for another person to put on you if you are in bed.  If you sleep on your back or sitting up, the hose does not get crimped or stuck under you.

A disadvantage is that the hose is in front of you as you move about, creating a tripping hazard.  If you're cooking, it's in front of you.
Many people also complain about sore ears from the weight of the hose, and if your ears sit close to your head, it pushes the ear out. 

How do you decide?
For me, I think I started wearing it behind my neck by accident, but I have stayed with it because the advantages (no tripping, behind me when cooking, no tug on ears, nothing around my neck) outweigh any disadvantages.

How about you?  You can put an answer in the comments.


Wednesday, May 20, 2020

COVID-19 and Face Covering

NOTICE:                
This was written at the beginning of COVID
when we knew less about masks.
I have left it here as history. .  

One can always find face coverings at the pharmacy.  They are not very attractive, but they do the job.

A new hobby is scarves, and I have found several stunning ones.  To make a face covering, here's one way:
Fold a 35" scarf into a triangle.
Hold the scarf over your nose and
Tie the scarf behind your neck.
Pull the ends forward and retie in front.

Voilà - a face covering.

Alas, it tends to slip and you spend all your free moments readjusting it.

Enter hair clips.
They can clip the scarf to your glasses or sunglasses.

Problem solved.

All set!

Wednesday, August 31, 2016

Oh, the Joys of Driver Education!


It has been three years since we last took the AARP Driver Safety class.  That means we need to take it again or lose the savings on our insurance.

We have taken the classroom course - six hours with an AARP volunteer instructor, following a prescribed course.  Oh, my, it's deadly!  If you don't get a good teacher, it is easy for the instructor to let the class get off-topic, but since the course has prescribed sections, that only lengthens the six hours.  And you can be sure that at least one person in the class enjoys the sound of their own voice.

Three years ago, we tried the online course.  It's also deadly.  When do you ever sit for six hours at the computer concentrating on something that is not your field of interest?  You can check out their courses here.

Actually, the course is very well designed.  It is a mixture of reading and listening.  You cannot skip sections or rush through.  But you can pause as often as you wish, as long as you finish within 30 days.  There are lots of things to click on, so you are not just staring at the screen.  There are videos and they read most of the material to you (which means, of course, that you cannot skim through. . . )  There are quizzes to check your understanding, but they are not graded, and they don't affect your "passing" the course.  If you complete the course, you pass.

The course costs around $30, and with a $5 discount for AARP members, it drops to around $25.  I checked for coupons by googling "AARP Driver Education promo code" and found one that dropped the course down to $18.   And the course is good for three years.

Is it worth it?
It is worth it economically - last year we saved $99 on our insurance (we do live in a high-insurance-cost state).  The reduction lasts for three years, then you take the course again.
It is also worth it safety-wise.  We each picked up a few new tips.




Tuesday, July 26, 2016

Swimming


I was delighted that my medicare plan included Silver Sneakers®, which means free membership in the YMCA (or some other gyms).  (Some medicare advantage plans include “Silver and Fit®,” and a year’s membership to the Y (or other health club) is $25.)  


My Y is about five miles from my house and it has a pool.  I knew I couldn’t do serious lap swimming and that I probably couldn’t keep up with the water aerobics class, but then I noticed the water arthritis class.  It’s perfect for someone with COPD, even if you don’t have arthritis.


Here’s how the Water Arthritis class at my Y goes.
With all the class lined up in the shallow end,
  • we walk across the pool (across 6 lanes).  Then we walk backwards to the start.  While doing this we may be doing hand exercises, too.
  • we march across or jog across
  • we do a wooden soldier march
  • cross country ski
  • tightrope walk (just a heel-to-toe walk that helps improve balance)
  • side step in various patterns
  • froggie jump
  • rocking horse
  • jumping jacks
This takes the first 15-20 minutes.


Then there are about 10 minutes of stretches - leg lift type activities  (front/side/back, hamstring).


Circle time in the pool provides variety with about 15 minutes of
  • neck stretches
  • toe/finger curls, ankle circles, flex-extend feet and hands
  • shoulder stretches
  • reaches
  • other movements like Russian Dance, Softshoe, moguls,


In my class, it’s now noodle time.  We use the noodles to do leg stretches, pendulum stretches, scissors kicks, and to bicycle around the pool.  I have found that the sponge dumbbells work better for me to use to get increased arm and shoulder exercise, and I can still do the leg and pendulum stretches and scissors kicks.  Using the dumbbells, I do the exercises recommended to strengthen arms and shoulders.


Who takes a class like this?
The people in my class, men and women, range in age from 55 to 89, and as you can imagine, there is a wide range of fitness.  Some people are not comfortable in water, and they use a sponge belt for buoyancy and stay where they can keep feet on the bottom.  All this means is that even if you have to slow-pace it, there are probably others in your same boat.  (And again, remind yourself that this class is for you - you do what you can, and you get out of it what you can.)  Not everyone has arthritis, since the class is good for helping with many issues, such as recovering from knee or hip surgery, or in my case, it’s the right level of strenuous for me with COPD.


Does it work?  I think so.  After a year of twice/weekly classes, when I was evaluated for pulmonary rehab, the PT seem impressed with my flexibility.  After three years, the pulmonologist seem surprised that my lung function is not going down as fast as would be predicted.  And he seemed surprised that as poor as my pulmonary function is, I can still do most things, at my own pace.  He credits it with the swimming two hours a week, and six days of exercise bike - 20 minutes on pool days, and 45 minutes on four other days.


How do I make myself do it?

The secret, for me, is to be on an inflexible schedule and to be half asleep.  The Y class is from 8-9.  I go to the Y in my sweats, carrying my bag with swim gear and fresh clothes for the day (packed the night before, so I don’t have to think in the morning).  Swim, shower at the Y (using their hot water!), dry off in the sauna, dress, and by 9:30 my exercise is done, and I’m ready to face the day.  (I bike from 7 to 7:20 on swim days or to 7:45 on non-swim days, all while channel surfing the morning news shows.) 

Future?
In the fall, it will be time to consider changing medicare plans. When I make the list of things I consider important, I include gym membership - it would be hundreds of dollars if I don't get it through a Medicare Advantage plan. So that is factored in the annual cost. And when oxygen becomes necessary, it will be a challenge to figure out how to use it in the pool. Maybe that's down the road a bit.



Friday, July 8, 2016

Gotta have pockets!


I prefer not to “carry” anything, keeping hands free. But some clothes do not have adequate pockets to hold the inhaler and iphone and keys and credit card and id. What to do?

 I was pleased to discover “Running Buddy” It’s a folding wallet type device that has strong magnets. Open it up and slide one side in your shorts or pants, fold it over and the flap has pockets that will hold your stuff.

 It was designed for runners. The large one holds the iPhone 6S+, an inhaler, and a few other things. The magnets are very strong, and the company says it will not damage credit cards or telephone. The reviews are excellent, and I’m glad to have it.

 There are also fanny-packs, waist pouches, and runner’s belts available. This one looks great.
Does the body come with it?

 Since I don’t like belts, the Running Buddy works for me. 

Because I don’t like carrying things, 
 I like my ScottEVest. 
 It will be in another post. I
t’s another cool thing to have.

Monday, June 20, 2016

Nocturnal Oximetry




The pulmonologist sent me home with a device to record oxygen levels overnight.  He said that if oxygen is needed at night, using oxygen will extend life.  OK.  I have done this twice before, and it’s been ok, but COPD is a progressive disease, so maybe it’s time. . . And as was pointed out in one of the forums I read, if I check during the night with my ordinary pulse oximeter, it is checking when I am awake, and maybe it was lower when I was asleep.  Here we go!


The device is the size of a paperback book, with a normal finger thing on a long cord attached to the device.  There is a “posey” velcro band to hold the cord.  Not sure why this seems important, but they said to use it, so I did.  That was the first mistake.  The “posey” had a powerful scent.  Perhaps it is the sanitizing solution they used or perhaps the previous user is heavily perfumed.  Maybe it wasn’t even sanitized.  Since I sleep on my side with my hand near my head it was overpowering.  I took it off and put it away, but it took a good half hour of snorting and coughing to get my system cleared.  


Second mistake - the device blinks with a yellow light.  So I got up and covered the light with a ribbon.  Some light came through.  So I put the device face down on an adjacent pillow.  If I checked the device during the night, sometimes I forgot to put it face down.  I had dreams of wandering through the forest chasing lightning bugs.


Third mistake - the finger holder has a red light.  I had other dreams of fire engines.


It was the worst night sleep I’ve had in years!


Good news is that from what I can see, the saturation was acceptable.  Whenever I looked during the night, it was above 93.  We’ll see what the data shows when I send the device back to be read.


~~~~~~~~~~~~~~~~~~~~~


I see that they are developing a device to connect to the iphone.  It costs around $50, but the reviews are not good.  


Perhaps improvements are on the way???  If it works, it would be great and a vast improvement on the $790 I signed that I would pay if I lost or destroyed the borrowed device.  For that money I could buy the best iphone SE with the greatest memory, pay sales tax, buy the oximeter and still have money left over.

Sunday, June 5, 2016

Rescue Inhaler


Rescue Inhalers


Now it’s time for a rant.  IT IS NOT A RESCUE INHALER


As soon as I was diagnosed, I was given a prescription for Pro-Air, “a rescue inhaler”.  I know what inhaler means - breathe in.  I know what rescue means - save from drowning or a burning building.  During 8 years, I maybe used two inhalers.  Not that I shouldn’t have been using them.  But I only needed “rescuing” a few times - like when I was gardening in the sun at a humid 90º and didn’t think I could make it back to the house.


Calling the albuterol a rescue med meant I was not using it.


Then I went to Pulmonary Rehab.  (More on that in another post.)
That’s when I learned I should have been using it much more often.
Like before exercise.  Really?  I haven’t even started huffing and puffing because I’ve not even started.  So I clearly don’t need rescuing!  Well, it turns out that the inhaler opens lung passages to be able to accommodate more air, and it may make it easier to exercise longer and harder.  


Now I use it before exercise.  Also in the car on the way to the mall or grocery store, so that I can enjoy the walking.   And for some reason, around 4PM I seem to need it for no reason at all.


I asked my doc how to know if I was using it too much (this was after a week of heat and humidity and high ozone levels).  His answer was that I would know if I couldn’t stand the rapid heartbeat and hyper feeling.


So now I use the inhaler if it will improve my life not save my life.


Who can afford this?  
This fall, instead of giving me a paper copy of a prescription for Ventolin, the primecare folk sent it directly to the pharmacy.  The pharmacy called to see if I really wanted it filled, since, with my medical plan, they would cost $45 each!!!!  One of the forums I read has several folk who order their meds from Canada or India.  I tried their suggestion, and I placed an order.  Sixteen - yes, that’s 16 - inhalers were $89, including shipping.  Is there something wrong with this picture?  

Are these pharmacies legit?  Or are they the ones who sell the little blue pills. . .?  I took the advice of the folk on the forums I read.  A website to check on Canadian prices is http://www.pharmacychecker.com/  I have used three different pharmacies.  There is also an Indian pharmacyt that some of the forums recommend. It's alldaychemist.com. Please send me a message if you would like more information. You can  email here.

Please remember, this is not advice from a medical professional. This is my opinion as a COPD sufferer.